The Blooming Rose Foundation

About the Foundation
Hello and welcome to the Blooming Rose Foundation. My name is Kathleen Quinn East and I am the CEO and founder of the Blooming Rose Foundation. I would like to tell you a little about myself and how I began this chapter in my life. As stated throughout the site, my daughter Maylie was diagnosed just before her third birthday in February 2009. We knew very little about Cystic Fibrosis except that it is a disease whose name alone seems to send a slight chill through your body. I don’t want to elude anyone by my current state of positivity, the first couple of days were devastating, I remember wondering if the huge hole that had found a place in my heart would ever be healed. But, I had one crucial phone call with a wonderful mother of a boy in Montana who is thriving with CF. She helped me to turn my perspective around and have faith in the impending cure and treatments that were making everyday life fairly normal, albeit a little more work. Following that phone call I felt like I finally realized what my place was in this life. I am continually grateful to her for that phone call, and all those that have followed.

The Blooming Rose Foundation was created to give hope to families immediately following diagnosis, fundraise to positively reach a vast array of individuals and offer an online resource for individuals, families, and friends to find up to date research, links to encouraging websites and blogs as well as a way to connect with other families and adults with CF. Blooming Rose Foundation will talk with families about raising a child who is thriving with CF; the positive outlook and breakthrough treatment available now and on the horizon.

Following a CF diagnosis, BRF will offer support services to families, nationwide. Our services include contact with the family, a list of resources and websites as well as brochures and informational packets that are donated from approved CF foundations, organizations and blogs. BRF will also offer an extensive website with links to parents who have children thriving with CF, adults who are thriving with CF, as well as informative websites that we encourage parents to read through to see the potential of their child. In addition to social services BRF will have a heavy focus on fundraising, both locally as well as nationally, effecting policy change to help our environment to be safer for our children as well as promoting advocacy through proactive parenting.

UPCOMING CFRI 23rd National Cystic Fibrosis Family Education Conference

July 30th-Aug 1st.  Redwood City, CA – Here is a link for more info.  SO EXCITED!!!!!