Isabel Stenzel Brynes, MSW, MPH
Adult with CF, Author, Social Worker, Patient Advocate
Director of nonprofit The Breathing Room
Co-author of the book, “The Power of Two: A Twin Triumph over Cystic Fibrosis”
Isabel Stenzel Byrnes, MSW, MPH is an author, social worker and patient advocate and a 39 year old person with cystic fibrosis, 7 years post-transplant. She graduated from Stanford University with a degree in Human Biology in 1994. She completed a Master’s degree in Public Health in Epidemiology and Biostatistics in 1998 and a Master’s
degree in Social Welfare with a Health Specialization in 1999 from the University of California, Berkeley. Isabel has worked at Lucile Packard Children’s Hospital in social work and health education.
Isabel is a leader in the cystic fibrosis community. She chairs the Conference Committee at Cystic Fibrosis Research, Inc., and is a co-chair for the Heroes of Hope Living with Cystic Fibrosis Patient Recognition Program. She is a columnist for the United States Association of Cystic Fibrosis Adults newsletter Roundtable. Isabel currently serves as a Director for the nonprofit The Breathing Room.
Together with her twin sister, Isabel has recently published “The Power of Two: A Twin Triumph over Cystic Fibrosis.” The twins are central characters in the documentary film project also called “The Power of Two.” Isabel is an active volunteer for the California Transplant Donor Network, and serves on the Patient Affairs Committee for the United Network of Organ Sharing, both of which help to raise awareness about the critical need for organ donation. She is a much sought-after public speaker. For pleasure she facilitates therapeutic writing groups and plays bagpipes with the San Francisco Stewart Tartan Pipes and Drums. Isabel lives in Redwood City, California, with her husband Andrew.