CF Questions (ALL)
CF Questions (ALL)
October 13, 2011 No Comments
Pulmonary/Pharmacology Question: My granddaughter is 10 months old should we start pulmozyme to be preventive or wait till we need too? The Doctors all seem to have different views on this.
October 3, 2011 No Comments
How to encourage kids to stick to their CF treatments!!!
August 29, 2011 No Comments
Pulmonary Question: My 10 year old daughter has been taking azithromycin four times a week as a preventative therapy. I can not find a lot of information regarding the benefits vs. the possible side affects. Will you share any information you have on this therapy? —
August 5, 2011 No Comments
Pulmonary Question: My 4 year old daughter has tested positive for MSRA since February. I understand some doctors are treating more aggressively for the bacteria now but there is not a consensus among doctors. Current antibiotic is Clindamycin but the doctors don’t know what they will do if she tests positive again after she is done with this round. They have mentioned not treating her at all and taking the road of MRSA being her “normal”. I have a hard time with this. Also I have a hard time with them not pursuing finding out if its actually in her lungs so they know for sure if she should continue to be treated. At the same time they mentioned admitting her for IV antibiotics. I am not sure what to make of all of this. Any advice? Some background info… she has never tested positive for anything but MRSA. She has had to be aggressively treated with antibiotics and treatments were increased when she was very symptomatic but she never cultured positive for any bacteria.
July 28, 2011 No Comments
Pulmonology Question: “Can a child that cultures several “bugs” over a long period of time really eventual get “normal flora” as a culture result?”
July 14, 2011 No Comments
Mental Health Question:”Are there any anti-depressants that can be combined with all the other chemicals/medications and still be effective but not deadly, and not make you totally out of it? Full brain function and thought processing is imperative. How do you get a cf adult to consider trying such?”
July 5, 2011 No Comments
Pulmonary Question: How often do children need to have a bronchoscopy? My granddaughter is 4 y/o and has never had one. She has had a recurrent cough that comes back every time she finishes a round of antibiotics.. she has a hx of pseudo but cultures normal flora now, (the sample is taken by her coughing). Just wanting to know how often a child should have bronch.
June 28, 2011 No Comments
Nutrition Question:”What does a CF adult need to be watching for to prevent CFRD (cystic fibrosis related diabetes. How does one manage a high calorie diet while trying to balance everything?”
June 22, 2011 No Comments
Pulmonology Question:I am a 35 year old with CF. I cultured mycobacterium abscessus and MAC last spring. After months of IV’s and continued oral antibiotics I have been ablet to get the m. abscessus under control, while the MAC is being more resistant. After culturing these new bugs I received 2 very different opinions about how I should be treated. I am heading to NIH to get another opinion in a couple weeks. My questions is: Why does there not seem to be a standard of care when it comes to the mycobacteriums?
June 21, 2011 No Comments
