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Uncategorized Question(s)
August 29, 2011 No Comments
Pulmonary Question: My 10 year old daughter has been taking azithromycin four times a week as a preventative therapy. I can not find a lot of information regarding the benefits vs. the possible side affects. Will you share any information you have on this therapy? —
June 28, 2011 No Comments
Nutrition Question:”What does a CF adult need to be watching for to prevent CFRD (cystic fibrosis related diabetes. How does one manage a high calorie diet while trying to balance everything?”
June 15, 2011 No Comments
After my bilateral lung transplant, I have had some trouble adjusting my enzymes. I find the right dose and it works for many months and then I start having trouble again and find myself trying different doses. After my transplant I started to gain weight. I now have to watch my calories. Otherwise, I would continue to gain too much weight.It puzzles me! Thank you, Marianne
June 13, 2011 No Comments
I am a 35 year old with CF, raising 3 children…11, 8 & 4. I was on IV’s for 5 months last year and my health has started to decline. My children, especially my 8 year old, have had some difficulty coping. We have been honest in answering questions on a level they can understand. My daughter especially gets destructive and act out when she feels anxious about the situation. I’m looking for feedback on how to redirect and punish inappropriate behavior, while still acknoledging and appreciating her anxiety. I often end up feeling guilty about the anxiety my disease causes, while foregoing the punishment.
June 10, 2011 No Comments
I need advice if a 23 years old girl with CF can do yoga. Or what kind of exercise is better?
September 4, 2010 5 Comments
CFer, Cyster, Fibro….camaraderie or defining?
May 6, 2010 1 Comment
Tylenol recall- response from a pulmonologist
March 9, 2010 2 Comments
A little of this and that….
February 12, 2010 No Comments
Things I Love!!
January 25, 2010 9 Comments
