Websites and Blogs We Love!!
Blogs/Websites
I have personally befriended all the bloggers on my list. They are incredible individuals and cease to amaze me in their positivity, faith for the future and desire to help new parents to traverse the crazy, confusing world of CF. That being said, blogs are real. I have yet to read anything that has made me shy away (and I have a weak heart), but I have to say that it is more likely than with the websites below as their information is constantly changing and they are living the CF life. Please know that I choose to honor all these individuals because they embody the vision that I have for the Blooming Rose Foundation. Go now and read, find your peace with CF through these amazing individuals!!
Love to Breathe
Somer is an incredibly beautiful woman, inside and out. Such an inspiration and gift to the CF community. She is an individual that gives all that she has to new parents and evokes a feeling of confidence in the future.
RunSickBoyRun
An incredible individual that will truly make you feel like CF is a gift! He is one of the most incredible support systems that I have found in the CF community.
Welcome to Joshland
Need inspiration about the wonderful future that lies ahead for your child thriving with CF? Meet Josh, an incredible mentor, educator, friend, singer…. all and all, just an inspiring individual.
He was just part of an beautiful project put on by CFVoice (another amazing CF resource found below). It was an incredible song event in dedication to Matt Scales an UK artist that fought the CF battle. Josh is joined by two other incredibly talented CFers, Tess Dunn and Rose Harting. It is a heart stopping, beautiful dedication to Matt’s life. Thank you CFVoice for such an amazing gift! Check out the link below to the song.
Matt Scales- Breathe
WEBSITES - They, like the blogs are in alphabetical order-
Boomer Esiason Foundation
The Boomer Esiason Foundation is a dynamic partnership of leaders in the medical and business communities joining with a committed core of volunteers to heighten awareness, education and the quality of life for those affected by cystic fibrosis, while providing financial support to research aimed at finding a cure.
CF Roundtable
A newsletter written by adults with CF, for adults with CF. A wonderful resource for new parents!!
CFVoice (sorry no graphic to steal!)
An online community for people of all ages living with cystic fibrosis. A place for motivation, inspiration and connection to the CF community.
CysticFibrosis.com
Resource for information, support and news.
CysticLife
This website is INCREDIBLE!!!! This nonprofit is an amazing asset to new families. It has an incredible forum in which to “meet” and communicate with other CFers or families. In addition it has an incredible pamphlet that will be a much needed guide for new parents learning to traverse through the world of CF. It will be going out in all of our new parent packets!! YEAH!
Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
Cystic Fibrosis Research, Inc- What an incredible foundation!!
CFRI A community of families professionals and volunteers committed to funding CF research and improving the quality of life for children and adults with CF.
Maggie’s Miracle Makers
An amazing young woman who is an incredible inspiration and resource for the CF community. In particular, I recommend her “Living with CF” page!
The Rock CF Foundation
There are those people in your life that you read about and see in publications that you think would probably be to busy in their own life to talk with a new mom. That is how I always felt about approaching Emily. She is a bit like a CF icon in my perspective. However, she managed to make me feel like she was blessed to talk with me, which is humorous!! Yet, incredibly endearing and speaks words about her as a woman. Her perspective on CF is much like that of the other bloggers, ROCK CF!! She is an incredible woman that see no bounds for CFers. She brings hope to the CF community through music and education. Incredible! (Click HERE for her inspiring blog)
Usana Vitamins
The most amazing, pharmaceutical grade vitamins. Perfect for CFers and their families.
MONTANA
Breathin’ is Believen’
Breathin’ is Believin’ - A wonderful financial and emotional support for families in Bozeman, MT.
Great Strides
Great Strides in Montana
** I will be constantly adding new websites as I come across ones that I feel are positive, uplifting and up to date. Please let me know if you have any recommendations.
