Comments on: The Good stuff! Drugs, Drugs and more Drugs! http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/ assisting families with Cystic Fibrosis Fri, 29 Jul 2011 00:35:15 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Antone Gallegos http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-138 Antone Gallegos Sun, 30 May 2010 21:46:09 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-138 Wow I'm honestly the only comment to this awesome article? Wow I’m honestly the only comment to this awesome article?

]]> By: Rena Strong http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-137 Rena Strong Sun, 30 May 2010 05:54:26 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-137 If only more than 73 people could hear this! If only more than 73 people could hear this!

]]> By: Angelique Kincaid http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-136 Angelique Kincaid Sat, 29 May 2010 21:27:37 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-136 You have done it once more. Great article! You have done it once more. Great article!

]]> By: Orval Cowan http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-134 Orval Cowan Thu, 27 May 2010 18:12:38 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-134 You've done it again. Incredible writing! You’ve done it again. Incredible writing!

]]> By: Bruce http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-124 Bruce Wed, 19 May 2010 17:58:46 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-124 We have clinic tomorrow. I've read and reread the blog and have my questions ready for our team. I can't thank you enough for posting such specific information!!! When do you have clinic again? When will you go back to Sweden for follow up? Next year? Will your CF team here do follow up wash outs to compare lung function or will you have to wait for the Swedish team to do them? I'm most curious to see how the American team will work with and incorporate the Swedish care team's recommendations into Mylie's routine visits. I know you're busy unpacking and catching up so won't keep you. Thanks again for the time, effort and candidness! k. We have clinic tomorrow. I’ve read and reread the blog and have my questions ready for our team. I can’t thank you enough for posting such specific information!!! When do you have clinic again? When will you go back to Sweden for follow up? Next year? Will your CF team here do follow up wash outs to compare lung function or will you have to wait for the Swedish team to do them? I’m most curious to see how the American team will work with and incorporate the Swedish care team’s recommendations into Mylie’s routine visits.

I know you’re busy unpacking and catching up so won’t keep you. Thanks again for the time, effort and candidness!
k.

]]> By: Dave http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-79 Dave Sun, 25 Apr 2010 16:11:31 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-79 We have clinic tomorrow. I've read and reread the blog and have my questions ready for our team. I can't thank you enough for posting such specific information!!! When do you have clinic again? When will you go back to Sweden for follow up? Next year? Will your CF team here do follow up wash outs to compare lung function or will you have to wait for the Swedish team to do them? I'm most curious to see how the American team will work with and incorporate the Swedish care team's recommendations into Mylie's routine visits. I know you're busy unpacking and catching up so won't keep you. Thanks again for the time, effort and candidness! k. We have clinic tomorrow. I’ve read and reread the blog and have my questions ready for our team. I can’t thank you enough for posting such specific information!!! When do you have clinic again? When will you go back to Sweden for follow up? Next year? Will your CF team here do follow up wash outs to compare lung function or will you have to wait for the Swedish team to do them? I’m most curious to see how the American team will work with and incorporate the Swedish care team’s recommendations into Mylie’s routine visits.

I know you’re busy unpacking and catching up so won’t keep you. Thanks again for the time, effort and candidness!
k.

]]> By: Brian http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-76 Brian Sun, 25 Apr 2010 09:37:33 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-76 We have clinic tomorrow. I've read and reread the blog and have my questions ready for our team. I can't thank you enough for posting such specific information!!! When do you have clinic again? When will you go back to Sweden for follow up? Next year? Will your CF team here do follow up wash outs to compare lung function or will you have to wait for the Swedish team to do them? I'm most curious to see how the American team will work with and incorporate the Swedish care team's recommendations into Mylie's routine visits. I know you're busy unpacking and catching up so won't keep you. Thanks again for the time, effort and candidness! k. We have clinic tomorrow. I’ve read and reread the blog and have my questions ready for our team. I can’t thank you enough for posting such specific information!!! When do you have clinic again? When will you go back to Sweden for follow up? Next year? Will your CF team here do follow up wash outs to compare lung function or will you have to wait for the Swedish team to do them? I’m most curious to see how the American team will work with and incorporate the Swedish care team’s recommendations into Mylie’s routine visits.

I know you’re busy unpacking and catching up so won’t keep you. Thanks again for the time, effort and candidness!
k.

]]> By: Michelle http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-65 Michelle Mon, 19 Apr 2010 23:52:38 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-65 Thanks girls and I am so glad if any of this info is of benefit for other families. I am very interested in what your team says Kelly. Maylie's doc and I talked about the possibility of a "hard sell" but, after being there and seeing their adults, meeting other parents, ect. It is worth the fight!! :) The short answers (as the kiddos are restless and I have to get some photos up! :)) - we plan to go back for her yearly exam, every year -our next clinic is not until the beginning of March -washouts are only available in Sweden and possibly the UK. Feel free to ask any other questions, I am never too busy for you Kelly! Thanks girls and I am so glad if any of this info is of benefit for other families. I am very interested in what your team says Kelly. Maylie’s doc and I talked about the possibility of a “hard sell” but, after being there and seeing their adults, meeting other parents, ect. It is worth the fight!! :)
The short answers (as the kiddos are restless and I have to get some photos up! :) )
- we plan to go back for her yearly exam, every year
-our next clinic is not until the beginning of March
-washouts are only available in Sweden and possibly the UK.
Feel free to ask any other questions, I am never too busy for you Kelly!

]]> By: Kat East http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-31 Kat East Mon, 28 Dec 2009 19:47:18 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-31 Thanks girls and I am so glad if any of this info is of benefit for other families. I am very interested in what your team says Kelly. Maylie's doc and I talked about the possibility of a "hard sell" but, after being there and seeing their adults, meeting other parents, ect. It is worth the fight!! :) The short answers (as the kiddos are restless and I have to get some photos up! :)) - we plan to go back for her yearly exam, every year -our next clinic is not until the beginning of March -washouts are only available in Sweden and possibly the UK. Feel free to ask any other questions, I am never too busy for you Kelly! Thanks girls and I am so glad if any of this info is of benefit for other families. I am very interested in what your team says Kelly. Maylie’s doc and I talked about the possibility of a “hard sell” but, after being there and seeing their adults, meeting other parents, ect. It is worth the fight!! :)
The short answers (as the kiddos are restless and I have to get some photos up! :) )
- we plan to go back for her yearly exam, every year
-our next clinic is not until the beginning of March
-washouts are only available in Sweden and possibly the UK.
Feel free to ask any other questions, I am never too busy for you Kelly!

]]> By: kelly http://www.bloomingrosefoundation.org/the-good-stuff-drugs-drugs-and-more-drugs/comment-page-1/#comment-30 kelly Mon, 28 Dec 2009 19:25:45 +0000 http://www.bloomingrosefoundation.org/?p=516#comment-30 We have clinic tomorrow. I've read and reread the blog and have my questions ready for our team. I can't thank you enough for posting such specific information!!! When do you have clinic again? When will you go back to Sweden for follow up? Next year? Will your CF team here do follow up wash outs to compare lung function or will you have to wait for the Swedish team to do them? I'm most curious to see how the American team will work with and incorporate the Swedish care team's recommendations into Mylie's routine visits. I know you're busy unpacking and catching up so won't keep you. Thanks again for the time, effort and candidness! k. We have clinic tomorrow. I’ve read and reread the blog and have my questions ready for our team. I can’t thank you enough for posting such specific information!!! When do you have clinic again? When will you go back to Sweden for follow up? Next year? Will your CF team here do follow up wash outs to compare lung function or will you have to wait for the Swedish team to do them? I’m most curious to see how the American team will work with and incorporate the Swedish care team’s recommendations into Mylie’s routine visits.

I know you’re busy unpacking and catching up so won’t keep you. Thanks again for the time, effort and candidness!
k.

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