Things I Love!!
THINGS I LOVE
(aside from my family of course!!)
Time to celebrate love and friendship! So many people to thank! So many reasons to be grateful to the amazing people that have touched my life, thanks to Maylie being blessed with CF!
1) All the people who have donated big and small to our foundation. Especially Zach my amazing webguy, without whom all of this would not have been possible. For as we all know, living with CF you begin developing virtual friendships and networks REAL quick! Zach is incredible and has helped me without question every time I ask. Thank you Zach!
2) Two CFers that have been crucial in my life for “finding my peace” with the diagnosis…at least for a couple of minutes after each phone call. 
-Josh Mogren- www.welcometojoshland.com
-Ronnie Sharpe- www.runsickboyrun.com /www.cysticlife.org
3)For an organization who takes pride in research, collaboration, education AND support…CFRI!
4) For all the amazing CF organizations out there that see fighting CF as a team sport and want to win this war together!!
http://lovetobreathe.blogspot.com/
I know there are so many more……….
5) And…….the very exciting 1st annual (can you say that, if it is the first?) Woodlands Bluegrass Festival!!!
We are so honored to have a couple of great bands….
LITTLE JANE AND THE PISTOL WHIPS
Here is an awesome video clip…if you have a minute!
Also so incredible!!
And we also have been given a generous discount on a B-E-A-UTIFUL location!!
And last but not least the support of a number of amazing breweries around the state!!
Hopefully a couple more as well!
ISN”T LIFE GRAND?!
We all know we are on the road less traveled. Whether we choose to walk, run, skip or trudge is our choice. Learning that every road (even those off Highway CF) have their bumps and detours brings us that much closer to finding our path a little less daunting and a little more unique.
Breathe. Hope. Bloom.
1 comment
Aloha! I decided I should drop by with a brief comment given that I have put in the better part of the previous half an hour perusing through your weblog posts. I’m really liking just what you have here with your web log and I hope you stick with your writing. Anyway I will not leech away any more of your time, I simply wanted to say hello and keep up the good work.
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